2019 marks 10 years since Rob’s spinal cord injury….let’s get him standing and walking!
Imagine being a 14-year-old, athletic, popular kid and waking up one day to being a paraplegic.
Fast forward 10 years…you have learned to live (thrive) with your disability, graduated high school, going to school part-time, working part-time things are going well (aside from the frequent hospital stays – many due to living in a wheelchair).
What if you had an opportunity through the magic of robotics to not just stand upright but to walk for as much as 8 hours a day!?! I know if it was me – or even more so my child I would ABSOLUTELY do everything in my power to have the ability to walk.
Rob was born with a rare vascular anomalies condition, Blue Rubber Bleb Nevus Syndrome. This disease is caused by a genetic disorder, a birth defect, where veins and arteries are not formed correctly. Rob has numerous lesions or blebs throughout his body that bleed and have caused numerous hospitalizations. The largest mass is located in his chest cavity and attached to all of his main organs so cannot be removed. When Rob was an adolescent the mass eroded his spinal cord and caused his injury.
Ten years later Rob continues to fight for his health and live a lifestyle of a typical guy in his 20’s. Robs goal is to purchase a personal robotic walking system, an exoskeleton, which unfortunately is not covered by medical insurance. “An exoskeleton device will get me upright, move my lower body while increasing circulation, reducing bone atrophy, reducing the risk of pressure sores and allow me to look others in the eye. I’m 6ft tall!!” said Drescher.
For more information, please contact Team Rob at firstname.lastname@example.org or Help Hope Live at 800.642.8399.